Friday, September 25, 2015

Some More Hate Mail

Dear Congenital Myotonic Muscular Dystophy,

First let me say, you still suck! There are thousands of families in this world suffering because of you. Today, I am just relieved that we are not one of them. Just like many of the other nasty diseases and disorders we have had to endure waiting weeks or months to find out about, we once again have been spared another connection. I know this will not always be the case. Probably one day, there will be a name that we have to connect with our sweet Lottie. It will most likely be a friend of yours, in the same villianous family of muscle disease. 

Trust me, when we meet said foe, we will be a force to be reckoned with, we already are and he remains invisible by name. You can tell your friend, that Lottie has an army. An army of family, friends, therapists, online supporters and most importantly God. So he should watch out. 

The relief we feel knowing it's not you is overwhelming. We know that you are a nasty bloke who infects not only the one but generations and would have taken your toll on me later in life. We also know you would have severely stifled Lottie's development. Boo Hiss! Someday there will be a scientist that finds a cure to eradicate you! Who knows? Maybe it will be Lottie? Wouldn't that be fun! Until then ta-ta!

                         Sincerely,
                                  Mama Bear






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